I love my job, but the best part of my job is connecting rare disease patients. read more >

Over the last 3 years our team has worked hard to expand the RareConnect project and we are thrilled to announce we now have over 40 active global, disease specific communities with the launch of the undiagnosed brain diseases community! read more >
Siobhan Magnus’ talent as a vocalist provided her a national platform, and she says she is delighted to use those talents in ways she would never have imagined. read more >
In my role as NORD’s research grant program administrator, I’m in the unique position to frequently speak with many researchers. Whether they are applying for one of our scientific seed grants (“RFPs”), or asking if NORD has funding to study a particular rare condition – these conversations are always positive, always punctuated with enthusiasm. read more >
RareDisease Dialog is the official blog for the National Organization for Rare Disorders (NORD). NORD’s staff and friends will share information of interest to the entire rare disease community.
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