Jul. 02, 2013
Posted at July 2, 2013 8:09 pm by Stefanie Putkowski

One Response to A Rare Night #2 in New Hampshire

  1. Heather Long says:

    Stephanie, this story really touch my heart. I lost my son to an as yet undiagnosed disease. He was 5. Since then I have been advocating for other like him with an undiagnosed disease.

    I am very interested in learning more about the NORD programs that raise awareness about undiagnosed diseases and the video that NORD is doing with the UDP.

    Please contact me at your earliest convenience.

    Heather Long

Leave a Reply

*

EURORDISRare Disease Day USNORD