Apr. 04, 2013
Posted at April 4, 2013 3:32 pm by J Russell Teagarden

2 Responses to Borders Beyond Borders

  1. Nancy Masters says:

    Welcome to NORD, Russell. I applaud your desire to assist those in the Rare community, especially the families. As a member of the Gaucher Community, I know how important support can be. I remember fondly our Art and Medicine class, and I know you will do a wonderful job in this organization. I am willing to volunteer if you need me as (hopefully) my big paper is done!
    Nancy Masters
    Drew University

  2. NORD, thank you for your initiatives for the Rare communities, families, patients and friends. As a cryoglobulinemia patient/advocate our RareConnect community is a huge step in crossing borders around the world. Twitter and Linkedin allow groups to speak to professionals around the world but it is a tremendous job creating these links as patients.

    Helping NORD helps US. What can I do as a community administrator?

    Thank you,
    Marianne Vennitti
    Alliance for Cryoglobulinemia

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