Mar. 21, 2013
TOPIC: Featured News
Posted at March 21, 2013 7:23 pm
Feb. 28, 2013
Posted at February 28, 2013 11:39 am
Today is the day when people around the world will be posting stories, photos and videos about what it means to live with a rare disease. From Kalamazoo to Kiev, the last day of February is observed as Rare Disease Day. read more >
Feb. 21, 2013
Posted at February 21, 2013 4:25 pm
Feb. 14, 2013
TOPIC: Featured News, Patients & Members
Posted at February 14, 2013 6:40 pm
My name is Debbie Richardson, and I was diagnosed in 1994 with Stiff Person Syndrome (SPS), following four years of progressive symptoms. SPS is a rare autoimmune neurological disorder with an incidence of about 1 in 1,000,000, world-wide. read more >
Feb. 06, 2013
Posted at February 6, 2013 2:35 pm
The fourth annual Raise Your Hand campaign launched this week, and it’s already creating a social media buzz. This campaign, sponsored by Lundbeck, raises awareness and support for rare disease research. It also gives a spark of hope to patients previously left on the sidelines in the quest for a treatment. read more >
|
