Oct. 29, 2012
Posted at October 29, 2012 9:04 pm
Two staff members from EURORDIS (Rare Diseases Europe) participated in the conference co-hosted by NORD and DIA last week (U.S. Conference on Rare Diseases and Orphan Products). read more >
Oct. 25, 2012
Posted at October 25, 2012 7:58 pm
Oct. 24, 2012
Posted at October 24, 2012 3:38 pm
Oct. 23, 2012
Posted at October 23, 2012 2:11 pm
Oct. 22, 2012
TOPIC: Patients & Members
Posted at October 22, 2012 3:16 pm
From Left to Right: Mary Dunkle- NORD, Christy Greeley- Cystinosis Research Network, Ron Bartek-Friedrich’s Ataxia Research Alliance, Jeff Wuchich- Alternating Hemiplegia of Childhood Foundation, Mirta Avila Santos, American Behcet’s Disease Association (ABDA), Sandy McElgunn- ABDA, Megan O’Boyle- Phelan-McDermid Syndrome Foundation
Within the first hour of the Annual DIA-NORD U.S. Conference on Rare Diseases & Orphan Products, NORD and DIA hosted a panel of six patient advocates to help remind everyone that patients are at the heart of everything we will be talking about in the next few days.
|
