May. 08, 2013
TOPIC: Patients & Members, Research
Posted at May 8, 2013 9:29 pm
In my role as NORD’s research grant program administrator, I’m in the unique position to frequently speak with many researchers. Whether they are applying for one of our scientific seed grants (“RFPs”), or asking if NORD has funding to study a particular rare condition – these conversations are always positive, always punctuated with enthusiasm. read more >
Apr. 10, 2013
TOPIC: Patients & Members, Research
Posted at April 10, 2013 8:51 pm
What is antisense therapy? read more >
Posted at April 2, 2013 5:26 pm
Image Credit: Reuters/Jason Reed
I represented NORD at the White House this morning at an event where President Obama announced the launch of a “Brain Initiative” to help researchers find new ways to treat and cure brain disorders. The initiative includes: read more >
Posted at March 12, 2013 9:06 pm
Exomes are big news. Sequencing of the protein-encoding part of the genome is increasingly solving medical mysteries in children. read more >
Feb. 28, 2013
Posted at February 28, 2013 11:39 am
Today is the day when people around the world will be posting stories, photos and videos about what it means to live with a rare disease. From Kalamazoo to Kiev, the last day of February is observed as Rare Disease Day. read more >
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