Mar. 06, 2014
Posted at March 6, 2014 7:03 pm by Mary Dunkle

4 Responses to NORD Calls Proposed Repeal of Orphan Drug Tax Credit “Anti-Patient and Anti-Public Health”

  1. Ricki Zipkin says:

    I have FMD and quite possibly Ehlers-Danlos. How can any of you sleep at night, when you are considering pulling the rug out from so many of us? M disease has not real treatment, and no cure. I am begging you to reconsider the decision to repeal the “Orphan drug tax credit”. Thank you

  2. Melchor G Pavon says:

    I’m a volunteer with the MGFA, New Orleans Support Group and we support NORD’s efforts in opposing the proposed repeal of the Orphan Drug Tax Credit (ODTC).

  3. Mary Dunkle says:

    Individuals who would like to write to their elected officials on this topic can personalize a letter NORD has created and submit it to their representatives through the NORD website: http://bit.ly/1g5X6m5

  4. Linda Cuddihy says:

    My daughter has relapsing polychondritus, for which there is no known cure and only one primary medical group researching this devastating disease. Please do not take the tax credit away. New drugs and critical research is the only hope we have that one day a cause and cure will be found.
    Thank you for this forum.

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