May. 09, 2014
Posted at May 9, 2014 5:52 pm by Mary Dunkle

One Response to NORD Celebration Highlights the Courage of Children and Adults Living with Rare Diseases

  1. Susan Krug says:

    Thank you for the Honor and thank you Nord for bring awareness to all of us who have a rare disease. It means a lot to me to know you have our backs in the struggle to bring awareness to Hypophosphatasia and other rare and misdiagnosed disease!

    Thank you for a memorable night of celebrations Lives and Life. Its a star of light in our daily struggles ..

    Special Thanks to Mary and Carrie for getting me there and having a smooth trip.

Leave a Reply