I represented NORD at the White House this morning at an event where President Obama announced the launch of a “Brain Initiative” to help researchers find new ways to treat and cure brain disorders. The initiative includes: read more >
Posted at March 21, 2013 7:23 pm by E. Michael D. (Mike) Scott
If you’ve never seen or heard NIH Director Francis Collins talking about drug development — and specifically the development of new drugs for rare disorders — just click here to see his TED presentation recorded last year but just posted to the TED.com web site in the past couple of days.
Posted at February 28, 2013 11:39 am by Mary Dunkle
Today is the day when people around the world will be posting stories, photos and videos about what it means to live with a rare disease. From Kalamazoo to Kiev, the last day of February is observed as Rare Disease Day. read more >