We know the math:
In other words, nearly 1 in 10 of us have a rare disease. read more >
This year’s theme for Rare Disease Day is “Rare Disorders Without Borders.” It shows that rare diseases are a global issue, and if we work together in solidarity, we can create a better world for patients. Recently, we asked individuals on the Rare Disease Day US Facebook page what “Rare Disorders Without Borders” meant to them and we were really touched by some of the answers. read more >
Take Action Now to Support Rare Disease Research
Now that the election is well behind us, talks have resumed in Washington, DC about the Federal budget. To recap — the only major piece of the larger budget puzzle that was addressed at the end of the year was the expiration of the current Federal income tax schedule, also known as the ‘Bush tax cuts’ as they were championed and signed into law by former President George W. Bush. read more >
My name is Debbie Richardson, and I was diagnosed in 1994 with Stiff Person Syndrome (SPS), following four years of progressive symptoms. SPS is a rare autoimmune neurological disorder with an incidence of about 1 in 1,000,000, world-wide. read more >
RareDisease Dialog is the official blog for the National Organization for Rare Disorders (NORD). NORD’s staff and friends will share information of interest to the entire rare disease community.
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