Nov. 28, 2012
TOPIC: Advocacy
Posted at November 28, 2012 2:20 am
Nov. 27, 2012
TOPIC: Patients & Members
Posted at November 27, 2012 3:49 pm
NORD staff members Marsha Lanes, MS, Certified Genetic Counselor, Mary Dunkle, Stefanie Putkowski, RN, and Tai Spargo with Yukiko Nishimura at the NORD offices in Connecticut
A representative of the Japanese Patient Association and PRIP Tokyo, a rare disease research foundation, visited the NORD offices in Danbury, Connecticut, Nov. 26 to talk about global collaboration among rare disease patients and advocates. This was the second time in recent months that Yukiko, a long-time associate of NORD, has visited the Connecticut offices to discuss possible areas of collaboration. read more >
Nov. 21, 2012
TOPIC: Patients & Members
Posted at November 21, 2012 7:14 pm
Nov. 19, 2012
TOPIC: Advocacy, Patients & Members
Posted at November 19, 2012 8:17 pm
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