Oct. 22, 2012
Posted at October 22, 2012 3:16 pm by Tai Spargo

One Response to This is Why We Do This- Patients at NORD/ DIA Conference

  1. Leisa says:

    Like Megan O’Boyle, I too am not all those things she listed, but was for 16 months while my son, Samuel, was treated, and eventually passed away, from a rare disease. This past week I spoke at a fundraiser continually advocating for my son and the rare disease that took his life; so occasionally, I am those things as well. Thank you Megan. In those male dominated fields, I think for a mother to refer to herself as those things may not always be receptive. But if we keep saying it and showing it, I think it will aid our rare disease cause.

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