Posted at November 22, 2013 12:45 pm by Emily Fields
In celebration of NORD’s 30th Anniversary, we launched our 30 for 30 campaign releasing 30 words that describe who NORD is for the rare disease community. Throughout the campaign, we have encouraged supporters like you to make a contribution to NORD to help ensure NORD’s programs and services continue to unite and empower the community for years to come. 12 year old next generation advocate, Brooke Foster, sees the importance of honoring NORD’s 30th Anniversary through “going and doing”: read more >
One of my favorite moments at NORD’s recent 30th Anniversary celebration was seeing Abbey Meyers and Congressman Henry Waxman reconnect. The two played leading roles in the drama that resulted in the Orphan Drug Act of 1983. Both went on to provide key leadership on related issues — Abbey as the president of NORD for its first 25 years and Rep. Waxman in Congress.