Take Action Now to Support Rare Disease Research
Now that the election is well behind us, talks have resumed in Washington, DC about the Federal budget. To recap — the only major piece of the larger budget puzzle that was addressed at the end of the year was the expiration of the current Federal income tax schedule, also known as the ‘Bush tax cuts’ as they were championed and signed into law by former President George W. Bush. read more >
There are many reasons why one might support research into a specific rare disease. Perhaps a family member or other loved one has fallen ill to the disease. read more >
2011 and 2012 have been good years but the rate of innovation in drug development is anything but healthy, a venture investor focusing on the life sciences said yesterday at the U.S. Conference on Rare Diseases and Orphan Products underway this week in Washington DC. read more >
RareDisease Dialog is the official blog for the National Organization for Rare Disorders (NORD). NORD’s staff and friends will share information of interest to the entire rare disease community.
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