Tag: diagnostic tests | Rare Disease Dialog Blog

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Oct. 22, 2012

TOPIC: Featured News, Patients & Members

NIH Seeking Patient Input for Expansion of Undiagnosed Diseases Program

Posted at October 22, 2012 11:15 am by Mary Dunkle

Patient representatives who missed the recent NIH webinar regarding the planned expansion of the NIH Undiagnosed Diseases Program may still submit input on the questions discussed.

Twitter: RareDiseases

NORD joins Myotonic Dystrophy Fdn in honoring memory of Shannon Lord: http://t.co/pmO7oFvHkM 08:17:01 PM June 09, 2013
What are your favorite #raredisease movies? Comment on #NORD's latest blog http://t.co/RRNsxznUGJ 04:57:56 PM June 07, 2013
Wonderful blog post by #raredisease advocate, Megan Barron! http://t.co/Ec56mx75E7 06:40:02 PM June 05, 2013
Thrilled to announce launch of regional meetings for MPS VI! For more info contact Allie: afreitas@rarediseases.org #raredisease 06:14:49 PM June 05, 2013
NORD is proud to endorse the Sometimes it's PH campaign of the PHA: http://t.co/oLfe3BJIzr 05:58:59 PM June 05, 2013

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