
Image Credit: Reuters/Jason Reed
I represented NORD at the White House this morning at an event where President Obama announced the launch of a “Brain Initiative” to help researchers find new ways to treat and cure brain disorders. The initiative includes: read more >
On November 20, 2012, the Centers for Medicare and Medicaid Services (CMS) released the long-awaited proposed rules for health insurance market reforms and essential health benefits. These provisions of the Affordable Care Act (ACA) are meant to protect patients with pre-existing conditions from discrimination and provide protections against other insurance company abuses. We’re now in the process of reviewing the hundreds of pages and will provide comments to CMS on or before the due date. read more >
The elections are behind us and the lame duck Congress returns next week, hopefully to negotiate a solution to the looming “fiscal cliff” this country will face on January 1, 2013: sequestration, payroll taxes, and the Medicare “doc fix.” Sequestration, should it occur, means an across-the-board cut for federal agencies of at least 8.2%. read more >
RareDisease Dialog is the official blog for the National Organization for Rare Disorders (NORD). NORD’s staff and friends will share information of interest to the entire rare disease community.
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