Tag: Mary Dunkle | Rare Disease Dialog Blog

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Oct. 29, 2012

TOPIC: Advocacy, Featured News, Patients & Members

So Glad to Have our European Partners at our Conference!

Posted at October 29, 2012 9:04 pm by Mary Dunkle

Two staff members from EURORDIS (Rare Diseases Europe) participated in the conference co-hosted by NORD and DIA last week (U.S. Conference on Rare Diseases and Orphan Products). read more >

TAGS: Global Advocacy, Mary Dunkle, NORD and EURORDIS, patient organizations, Rare Diseases Europe

Oct. 24, 2012

TOPIC: Advocacy, Industry, Medical, Patients & Members, Research

Reduced Investment in Biomedical Innovation is Potentially Devastating for Patients

Posted at October 24, 2012 3:38 pm by Mary Dunkle

2011 and 2012 have been good years but the rate of innovation in drug development is anything but healthy, a venture investor focusing on the life sciences said yesterday at the U.S. Conference on Rare Diseases and Orphan Products underway this week in Washington DC. read more >

TAGS: Biomedical research, Mary Dunkle, R & D investment, Rare disease research

Oct. 22, 2012

TOPIC: Featured News, Patients & Members

NIH Seeking Patient Input for Expansion of Undiagnosed Diseases Program

Posted at October 22, 2012 11:15 am by Mary Dunkle

Patient representatives who missed the recent NIH webinar regarding the planned expansion of the NIH Undiagnosed Diseases Program may still submit input on the questions discussed.