Recently, NORD’s partners at Frontline Medical Communications (FMC) shared the results of a survey conducted among physicians who received a Rare Neurological Disease Special Report co-published by FMC and NORD.
Nine out of 10 respondents indicated that the content was somewhat or very useful, with 91% saying it would help them improve patient care, screen patients more proactively and treat them more effectively.
These findings are consistent with responses to a survey conducted by FMC among physicians and other healthcare professionals last year in which 88% of 1,632 respondents agreed that there is a need for more professional content on rare diseases. In that survey, 75% of the HCPs acknowledged that they have patients with rare diseases and 78% said they had searched the medical literature for information about rare diseases during the previous 12 months. read more >
NORD and Frontline Medical Communications have signed a strategic partnership agreement to collaborate and develop innovative educational programs for physicians and other healthcare providers (HCPs). read more >
Posted at January 6, 2014 4:59 pm by Diane O'Leary, PhD
It can be disheartening for rare disease patients to consider the problem of diagnostic delay. As NORD’s recent informal survey revealed, more than half of us spend three years or more looking for diagnosis and treatment. Once we find it, it’s natural to want to put the whole problem behind us. read more >