There are many reasons why one might support research into a specific rare disease. Perhaps a family member or other loved one has fallen ill to the disease. read more >
The single word that describes this week’s Rare Disease/Orphan Product meeting is read more >
FDA Deputy Commissioner Stephen Spielberg, MD, PhD, spoke on advancing the regulatory process.
read more >
Patient representatives who missed the recent NIH webinar regarding the planned expansion of the NIH Undiagnosed Diseases Program may still submit input on the questions discussed.
RareDisease Dialog is the official blog for the National Organization for Rare Disorders (NORD). NORD’s staff and friends will share information of interest to the entire rare disease community.
PATIENTS & MEMBERS
PETER L. SALTONSTALL
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