May. 20, 2013
TOPIC: Patients & Members
Posted at May 20, 2013 2:54 pm
I love my job, but the best part of my job is connecting rare disease patients. read more >
May. 13, 2013
TOPIC: Patients & Members
Posted at May 13, 2013 1:03 am
Over the last 3 years our team has worked hard to expand the RareConnect project and we are thrilled to announce we now have over 40 active global, disease specific communities with the launch of the undiagnosed brain diseases community! read more >
May. 09, 2013
TOPIC: Patients & Members
Posted at May 9, 2013 7:34 pm
Siobhan Magnus’ talent as a vocalist provided her a national platform, and she says she is delighted to use those talents in ways she would never have imagined. read more >
Apr. 04, 2013
TOPIC: Patients & Members
Posted at April 4, 2013 3:32 pm
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