June 10th was an emotional – but very educational – day for everyone who attended the Food and Drug Administration’s public meeting on Patient-Focused Drug Development for Inborn Errors of Metabolism. read more >
FDA stirred up a firestorm recently with its publication of a list of 39 diseases or disease areas … ultimately to be shortened to 20 … to be the focus of public meetings over the next 5 years in the new Patient-Focused Drug Development Initiative. read more >
RareDisease Dialog is the official blog for the National Organization for Rare Disorders (NORD). NORD’s staff and friends will share information of interest to the entire rare disease community.
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