Tag: patient organizations | Rare Disease Dialog Blog

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Dec. 26, 2012

RareConnect Team Hosts Successful International Meeting in Barcelona

Posted at December 26, 2012 2:39 pm by Alexandra Freitas

The first week of December marked the third international meeting of the RareConnect team. I joined my fellow community managers in sunny Barcelona, Spain to meet and plan 2013 initiatives for RareConnect. read more >

TAGS: Alexandra Freitas, eurordis, Global Advocacy, NORD, patient organizations, patient stories, patients, Rare Diseases, Rare Diseases Europe, rareconnect, social media

Oct. 29, 2012

TOPIC: Advocacy, Featured News, Patients & Members

So Glad to Have our European Partners at our Conference!

Posted at October 29, 2012 9:04 pm by Mary Dunkle

Two staff members from EURORDIS (Rare Diseases Europe) participated in the conference co-hosted by NORD and DIA last week (U.S. Conference on Rare Diseases and Orphan Products). read more >

TAGS: Global Advocacy, Mary Dunkle, NORD and EURORDIS, patient organizations, Rare Diseases Europe