I got a message just this morning telling me that the evolving Patient Centered Outcomes Research Institute (PCORI) is still looking for a wide variety of “non-scientist stakeholders,” including patients, caregivers, and advocacy group representatives, to act as reviewers of research grant applications submitted to PCORI in response to their recent funding announcements. read more >
RareDisease Dialog is the official blog for the National Organization for Rare Disorders (NORD). NORD’s staff and friends will share information of interest to the entire rare disease community.
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