Apr. 04, 2013
TOPIC: Patients & Members
Posted at April 4, 2013 3:32 pm
Feb. 28, 2013
Posted at February 28, 2013 11:39 am
Today is the day when people around the world will be posting stories, photos and videos about what it means to live with a rare disease. From Kalamazoo to Kiev, the last day of February is observed as Rare Disease Day. read more >
Feb. 26, 2013
TOPIC: Patients & Members
Posted at February 26, 2013 9:27 pm
This year’s theme for Rare Disease Day is “Rare Disorders Without Borders.” It shows that rare diseases are a global issue, and if we work together in solidarity, we can create a better world for patients. Recently, we asked individuals on the Rare Disease Day US Facebook page what “Rare Disorders Without Borders” meant to them and we were really touched by some of the answers. read more >
Feb. 06, 2013
Posted at February 6, 2013 2:35 pm
The fourth annual Raise Your Hand campaign launched this week, and it’s already creating a social media buzz. This campaign, sponsored by Lundbeck, raises awareness and support for rare disease research. It also gives a spark of hope to patients previously left on the sidelines in the quest for a treatment. read more >
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