May. 13, 2013
TOPIC: Patients & Members
Posted at May 13, 2013 1:03 am
Over the last 3 years our team has worked hard to expand the RareConnect project and we are thrilled to announce we now have over 40 active global, disease specific communities with the launch of the undiagnosed brain diseases community! read more >
Nov. 21, 2012
TOPIC: Patients & Members
Posted at November 21, 2012 7:14 pm
When I arrived through the gates at the Barretstown camp, I was eager to meet my campers and fellow group of volunteers, caras, Gaelic for friend. What I didn’t know is what a lasting impact this camp, set in Ballymore Eustace, Ireland, would have on my life. read more >
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