Tag: reimbursement | Rare Disease Dialog Blog

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Oct. 22, 2012

TOPIC: Featured News, Patients & Members

NIH Seeking Patient Input for Expansion of Undiagnosed Diseases Program

Posted at October 22, 2012 11:15 am by Mary Dunkle

Patient representatives who missed the recent NIH webinar regarding the planned expansion of the NIH Undiagnosed Diseases Program may still submit input on the questions discussed.

Twitter: RareDiseases

Rep Henry Waxman blog on 30th anniversary of #NORD & #raredisease #OrphanDrugAct: http://t.co/bt91v9o2aT about 4 hours ago
Check out FDA patient partners! http://t.co/I1mpQrGHDe about 6 hours ago
Get Informed. Get Involved. Help FDA Help Patients Have a Bigger Voice. http://t.co/esKbZOxiyY about 6 hours ago
New #raredisease blog: The best part of my job now live! By Program Manager, Alexandra Freitas! http://t.co/5f8HWZFE2t 08:17:27 PM May 21, 2013

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