Feb. 28, 2013
TOPIC: Advocacy, Featured News, Patients & Members, Research

Today is Rare Disease Day. Will You Show Your Support?

Posted at February 28, 2013 11:39 am by Mary Dunkle
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Today is the day when people around the world will be posting stories, photos and videos about what it means to live with a rare disease.  From Kalamazoo to Kiev, the last day of February is observed as Rare Disease Day. read more >

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Dec. 26, 2012
TOPIC: Patients & Members

RareConnect Team Hosts Successful International Meeting in Barcelona

Posted at December 26, 2012 2:39 pm by Alexandra Freitas

The first week of December marked the third international meeting of the RareConnect team. I joined my fellow community managers in sunny Barcelona, Spain to meet and plan 2013 initiatives for RareConnect. read more >

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