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Nov. 12, 2012

TOPIC: Featured News, Patients & Members

The Story Behind the Rare Disease Day School Curriculum

Posted at November 12, 2012 4:39 pm by Julia Su

Two weeks ago, as my flight landed in Boston, I stepped outside of the plane with a long tube in my arm, inside of which was a very special poster. It was the poster about a project I had completed with NORD. I was about to present this poster at the 2012 National Society of Genetic Counselors’ (NSGC) Annual Educational Conference in Boston. read more >

TAGS: Julia Su, Rare Disease Day, Students, Survey, Teachers

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How do you use online communities? Check out new blog by Allie Freitas- disucsses @RareConnect! #raredisease http://t.co/dREPfjeHIw 02:11:17 PM May 13, 2013
#NORD salutes all mothers of children with #rarediseases today & every day! 12:52:57 PM May 12, 2013
Do you know who is performing at our annual gala next week? #NORD #raredisease http://t.co/kTpUyjfdVs 08:21:11 PM May 09, 2013
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Congrats to #NORD Member Org- Sturge-Weber Foundation! Researchers identified genetic cause of syndrome! http://t.co/EJunYU5f9A … 02:38:02 PM May 09, 2013

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