Oct. 25, 2012
Posted at October 25, 2012 7:58 pm by Wayne Pines

One Response to The Word That Best Describes This Week’s Rare Diseases/Orphan Products Summit

  1. Frank Davis says:

    Many speakers at the summit referred to the best mode that has worked for many other rare disease communities is that it is a Team Sport. We need to include Patient Advocacy groups both national and international, Medical Research Scientists, NORD, Medical practitioners and the altruistic community in general. We need to figure out how to reach out the general public to let them know just how prevalent rare diseases are.
    Frank Davis
    Spastic Paraplegia Foundation

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