Summer is right around the corner, which means hot days, grilling, more time outside, and of-course the inevitable rainy-day stuck inside. In preparation for those days, I am trying to compile a list of movies that could make up a “rare disease film festival.”
Full disclosure: I have not seen any of the films I mention, which is precisely why I wanted to put a list together and get your suggestions! In the 1980s and 90s, there were a few award-winning Hollywood movies that featured rare disease stories.
Some of these included:
Although there have been several popular and star-studded films in recent years, including Extraordinary Measures (2010) and 50/50 (2011), the greatest critical success has been achieved through documentaries.
The most successful of these movies focus directly on the experiences of people living with rare diseases:
The takeaway for me is that the modern film audience appreciates the authenticity of hearing from patients directly. We all know how compelling rare disease stories can be, and these films underscore the power of video for raising awareness for rare disease patients.
But some excellent films have received very little critical notice. Success in helping viewers experience another person’s reality doesn’t always correspond to awards or success at the box office. So, what are your favorite rare-disease movies?
RareDisease Dialog is the official blog for the National Organization for Rare Disorders (NORD). NORD’s staff and friends will share information of interest to the entire rare disease community.
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