Jun. 07, 2013
Posted at June 7, 2013 4:53 pm by Tai Spargo

9 Responses to What are Your Favorite Rare Disease Movies?

  1. Erin Beavers-Cochran says:

    “The Boy in the Plastic Bubble” (it was a made for TV movie from 1976 inspired by the life of David Vetter). The protagonist had an immune deficiency disease similar to the one I have. It wasn’t 100% accurate and was obviously dramatized, but it raised awareness.

  2. Chuck Mohan says:

    A Few Good Men, staring Jack Nickelson and Tom Cruise. The death of a solider is the result of a Mitochondial Disease; MELAS.

  3. Erica says:

    Simon Birch, the actor has MPS IV

  4. Javier says:

    The elephant man

  5. Kell Brigan says:

    “First, Do No Harm” isn’t about a rare disease (epilepsy), but is still a great look at destruction presumptions in modern medicine. In other words, how the system is totally askew…

  6. Karen Durrant says:

    Morquio Syndrome (MPS IV) is what one of the children has in “The MIghty.”

  7. Fabiola says:

    “La decisión de Ann”

  8. Paul Clancy says:

    “Here, Us, Now” is a powerful 7 very moving film about the Hempel family and their quest for a cure for their beautiful twin girls Addison & Cassidy who have Niemann Pick C. The Wall Street Journal also did a wonderful multi chapter piece with video interviews following the Hempel family for 6 years – see the piece here http://projects.wsj.com/trials/?mg=inert-wsj#chapter=1

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