Nov. 29, 2012
Posted at November 29, 2012 10:16 pm by Peter L Saltonstall

3 Responses to What Would You Consider “Essential Health Benefits” For the Disease of Concern to You?

  1. Juanita Coy says:

    Essential Health Benefits for me:

    1.The Rebif injections that I take 3 times a week are very expensive. If I did not have insurance, I could not pay for it! Also, I take Provigil, Lexapro, etc. My health would be definitely effected it my insurance could not help.I feel my MS would worsen.

    2. The visits to my Neurologists would be out of my financial range as well. He is of great help to me in deciding how to handle my MS. I visit him twice a year.

  2. Mia DeFino says:

    Essential Health Benefits for RSD/CRPS

    1.Immediate access to diagnostic procedures and doctors (Time is of the essence!)
    2.Series of stellate ganglion blocks (outpatient hospital)
    3.Intensive and prolonged rehabilitation at OT/PT
    4.Access to prescriptions for anxiety/depression, pain relief, sleep aids, compression glove for endema, tens unit, far infrared heating pad, neurogenic cream
    5.Daily living modification consultant and access to adaptive technology
    6.Alternative therapy options: trigger point needling, acupuncture, massage therapy, cranial sacral therapy, naturopathy

  3. Linda Kocher says:

    Essential health benefits for MCAD:
    (1)yearly visits with genetic metabolic physician for bloodwork/nutrition evaluation and (2) health insurance coverage of levocarnitine

    I am currently appealing a decision by our health insurance company, which states that it no longer has to pay for my daughter’s levocarnitine Rx because it claims it is available OTC. However, OTC carnitine, according to the FDA, is a dietary supplement and as such is considered a “food”, is not regulated by the FDA, and cannot be promoted as a treatment for a specific disease–this would put the company (and by extension, the insurance company) in violation of DSHEA, wouldn’t it????

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